Breaking Ground in Patient and Family Centred Care

October 06, 2016

‚ÄčBy: Lydia Hanson, Senior Communications Associate, Holland Bloorview Kids Rehabilitation Hospital

Over the past decade, health care has experienced a transformational culture shift around patient engagement. Hospitals and other health care organizations are partnering with patients and their families not only in care planning, but more and more meaningfully in organizational and system-level decision making.

At Holland Bloorview Kids Rehabilitation Hospital, Canada's largest pediatric rehab hospital focused on improving the lives of kids and youth with disabilities, our major culture shift started about six years ago with the creation of our Family Leadership Program. We had a family advisory group prior to that, but the new Family Leadership Program provided the necessary framework to ensure our young clients and their families were fully and meaningfully engaged in decision-making at all levels of the organization, from program development to strategic planning.

In the years since the program started, the impact of our partnerships with patients and families has grown well beyond what we could have anticipated. Together we pioneered bold new initiatives, including a program to engage families in research planning and an award-winning patient and family centred care (PFCC) simulation training for clinicians.

To help grow PFCC initiatives and programs across the health system, Holland Bloorview is inviting patients, families and health care providers who are working to advance PFCC programs within their organizations to a one-day forum on November 29 in Toronto.

The PACE Forum (Patients and Providers Advancing Care Experiences) will feature workshops, opportunities to exchange ideas and speakers, including Helen Bevan, Chief Transformation Officer from the National Health Service in England and Dr. Joshua Tepper, President and CEO of Health Quality Ontario (HQO).

The aim is for participants to come away with a renewed sense of energy and practical strategies to bring their organizations' PFCC programs and patient-provider partnerships to the next level.

For more information and to register, please visit

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